Thick-it

Sydney's stay in the NICU has been a long one. She has been there for 18 weeks, we have seen three seasons and six different attending physicians. We are hopeful to not be there for the summer.

The month of March was an interesting one. Syd started it out by getting a virus. This stomach bug made her very tired, and she had a hard time keeping her food down. Luckily she was able to kick this bug and after a couple of days she was back to herself again. This really showed us how weak her immune system really is. Once Sydney comes home we will need to be extra cautious about her being around germs.

Once she got over being sick it was decided that Syd would benefit from bringing in the feed team from Children's Hospital of Boston. This team of specialists watched Sydney eat from a bottle. They did not like what they were seeing, so they arranged for her to go to Children's for a swallow study.

The study involved an ambulance ride down the street to Children's Hospital. This marked Syd's first road trip, although not a fun one. Once there she was put in a chair and a dye was added to her food. Using a ultra sound device they were able to see what happens when she sucks and swallows. Syd had a very uncoordinated action that resulted in milk getting into her nose when she tried to swallow.

The feed team decided to add a thickening agent to her milk and change her bottle. This was done to slow down the milk, and prevent the reflex that was causing the liquid to get into her nose, and make her choke. Immediately a change could be seen with the thicker milk, and change in bottle. The milk now began to go the right way, and Syd could eat without much incident.

Since using the additive "Thick-it" Sydney has been able to handle more and more of her eating responsibilities. Just yesterday we reached a large milestone when her NG feed tube was removed, and she ate orally on her own all day. Syd now just needs to show that she can keep this up, and gain weight. Once she does that, it wont be long before she is discharged.

40 weeks

Sydney reached her due date on Wednesday February 27th, 40 weeks gestation. This date also marked her 14th week in the NICU. Syd has continued to make good weight gain and is now 6lbs 7oz. She has also become very active, just like any full term baby would be.

Sydney knows what she wants. She will not hesitate to let mom and dad know that she wants to be held, or fed. She is very eager to feed, however it is still a difficult task at times for her. Her prolonged intubation makes it dificult for her. She is still working to build strength and stamina.

We were surprised this morning when we arrived at the NICU. Syd was out with her nurse at the main desk on a portable oxygen tank. Just sitting with her primary, content to be with her friends. She also now has a radio in her room. Sydney likes to listen to classical music when she is reflecting on the days events.

Sydney still has ups and downs, good days and bad. Through all this she continues to grow, and gain maturity. Her little personality is very evident. Her fiesty attitude continuing to push TeamKatz along.